Freedom & such…

So, some of you may remember; way back when; that I started my just giving page, which was two fold in request. The first being for my freewheel attachment for my wheelchair so that I could finally negotiate the somewhat procarious streets of Exeter, and wheel myself about unacompanied,. The second being for funds for my Osseointegration surgery, so that one day, I may have the chance of walking again.

I am so pleased to report that I reached the 1st milestone, with thanks for some extremely generous contributions, and purchased my freewheel. It arrived just over a week ago, and so far I have been out and about 5 times. I am up to 5 miles. It is brilliant. It helps alot with my confidence, and I have had no further tipping incidences; which plagued my wheeling before. I am so incredably greatful to those of you who were kind enough to share my page, and to donate.

t is a strange old world which we are living in at the moment. But for me, and others out there who suffer with chronic pain; this life is kind of, the norm. Not to be all melancholy about things, but when you are living with crps and other conditions like it; most of life is spent in isolation. I am lucky that I have the most supportive wife I could ever wish for, and a couple of beautiful fur babies to keep me sane.

I have recently completed the 1st half of a pain management course with King Edwards hospital for veterans in London (via zoom). It has helped so much. In the 4 days I got to work with some of the countries leading experts in pain management. They have written a programme for me to work my way through each day, which includes stretching, desensitisation techniques, mindfulness training and general learning all about pain and what and why it is! I would thoroughly recommend it to anyone who has the chance. I have a family day next week and then another 4 days to complete the course.

I have noticed a few posts on the amputee pages this week, with people suffering with phantom pain. As you may know from my 1st post, I suffered greatly with this post op. It was almost instant, and excrutiating. But, thanks to Marianne at Exeter mobility centre, who came to see me in hospital, and start mirror therapy 6 days after my amputation, I have hardly had any since. I was rigid about following the instructions. I am no saint, and did miss a few days here and there, but it takes all of 9 minutes. I did this 1-2 times a day for a month. So worth it. Now, it is not for everyone, and does have some restrictions as to who can and cant do it; but if you are suffering, do speak to someone who can take you through the training and guide you how and what to do.

I hope you are all safe, and not too bored 😀